What was the beginning of your endometriosis journey like before you knew what was happening?
Periods all time severe pain
When were you diagnosed, and what was your journey to getting diagnosed like?
Age 14
What did it feel like to finally have a name for what you were experiencing?
Strange, confused
How does endometriosis show up in your body and daily life?
Im on alot of meds
How would you describe the pain or physical challenges of endometriosis?
Very hard
Do you have “good days,” and if so, what do they look like?
I can get a hour or 2 if that
How has endometriosis affected your education, work, routines, or ability to make plans?
Alot
Has endometriosis had an impact on your finances or access to care?
Yes
What has your experience been like with doctors, specialists, and navigating the healthcare system?
My gynecologist is the best but its that nad I got go bk to a different hospital
What has your experience been with treatments, surgeries, medications, lifestyle changes, or other approaches?
Horrible i hate hospitals now due to it all
What has it been like to live with a condition that often isn’t visible to others?
Hard. Difficult, ppl think we are liein
Have there been times when you felt dismissed or not believed about what you were going through?
Yes
What has the emotional or mental side of living with endometriosis been like for you?
Its set my bipolar off badly
How has endometriosis affected your relationship with your body, identity, or sense of self over time?
Yes feel ugly cant look in mirrors
How has endometriosis affected your family relationships, friendships, or dating life?
Alot
Has endometriosis had an impact on intimacy or your sexual life?
Alotno
If relevant to your experience, how has endometriosis influenced your thoughts, decisions, or experiences around fertility and family planning?
No
Beyond treatment, have you found anything that genuinely helps you cope physically or emotionally?
No
Do you feel supported in your journey? Who or what has helped you most?
My gynecologist
Have you connected with others who have endometriosis, either online or in person? What has that experience been like?
Yes
How has your relationship with endometriosis changed over time?
Alot
More broadly, what are your thoughts on how the medical community understands and prioritizes endometriosis?
Wish there was a cure im awaiting my 17th op now
How do you feel endometriosis is represented in society or the media? What would you like to see change?
Need more understanding an more tests to get cure
What would you like more people to understand about endometriosis?
The impact it has on our lives
When you think about the future, what fears, concerns, or hopes do you have?
Its keeps coming bk
Is there anything else you’d like to share?
No