When were you diagnosed, and what was your journey to getting diagnosed like?

I was diagnosed at age 38. I went to many doctors and they all dismissed my symptoms. Went to a specialist and he did a scan and said there is not much they can do. I then asked him if i can die from it. He said no. 6 months later a endometerioma burst, caused major inflamation. I thought it was pain from a flare so only went to the doctor a day later. All organs was infected and had a urgent major surgery to get all flushed and removed. 2 years later and my pain and bleeding is unbearable. Only living on pain meds.

What did it feel like to finally have a name for what you were experiencing?

Not good cause there is no cure and the doctors does not help much

How has endometriosis affected your family relationships, friendships, or dating life?

A lot of people dont understand how bad endo gets and think your a negative person when you complain about pain so i dont ever talk or social with people.

Has endometriosis had an impact on intimacy or your sexual life?

Yes, when i am bleeding

If relevant to your experience, how has endometriosis influenced your thoughts, decisions, or experiences around fertility and family planning?

I am almost 40 and would never be able to get pregnant.