What was the beginning of your endometriosis journey like before you knew what was happening?
Considered normal
When were you diagnosed, and what was your journey to getting diagnosed like?
Age 19 ,doctor assumed it was blood pooling and suggested to burn out blood
What did it feel like to finally have a name for what you were experiencing?
At the time (30 years ago) it wasn’t talked about
How does endometriosis show up in your body and daily life?
Different areas of pain every day
How would you describe the pain or physical challenges of endometriosis?
A scale of 1-10 probably 5 every day
Do you have “good days,” and if so, what do they look like?
Pain levels of 2-3 considered good
How has endometriosis affected your education, work, routines, or ability to make plans?
No
Has endometriosis had an impact on your finances or access to care?
No
What has your experience been like with doctors, specialists, and navigating the healthcare system?
Once I was diagnosed I never had follow up
What has the emotional or mental side of living with endometriosis been like for you?
Tiring
How has endometriosis affected your relationship with your body, identity, or sense of self over time?
Confusing
How has your relationship with endometriosis changed over time?
No