Month: July 2026

Endometriosis

It varies by day. Some days, it feels like someone’s craving your insides, like you’re a jack-o’-lantern. Other days, it makes you bloat like an eight-month-pregnant woman. Sometimes, it’s like someone’s beating you with a baseball bat. Your energy levels are low, you’re always exhausted, and most days, you’re in pain.
Endometriosis

I’m in pain everyday the whole day, I am exhausted all the time. I only wear black pants because my period is not regular and I have a fear of soiling myself.
Endometriosis

I don’t put any effort into fertility concerns because I don’t want to put my body through trouble.
Endometriosis

Every single day I have pain. Not one day goes by where I do not experience any pain. I am bloated most days. A few years after my surgery I was diagnosed with may thurner syndrome. A few times a month that flares up with my endometriosis.
Endometriosis

Endometriosis has made starting a family nearly impossible…. I’ve experienced 3 miscarriages naturally, three IVF cycle with 34 embryos and none of them making it to blastocyst. Endometriosis has robbed me of my dream of becoming a mother. It has been devastating
Endometriosis

They don’t understand, we are not heard, we are not seen, there is not enough research on endometriosis in women. They do not know our pain!!
Endometriosis

I’ve expierienced the worse pain in my life with Endo. Nothing has compared so far. It messes up how I answer the pain scale because in comparison everything else feels like mild discomfort.
Endometriosis

It’s tough. I feel like a bad mother when I don’t have the energy to do it all for them. I feel like a bad wife when I’m in pain or sexual activity is painful and my husband feels bad despite not trying to hurt me. I feel like a terrible coworker, and nurse when I have to miss time for my illness. And a bad friend when I miss out on plans from pain and exhaustion.
Endometriosis

Completely isolating because no one can see it. If I showed how I feel I’d lose my job and marriage. People say they care but can’t cope with listening or understanding what it can possibly feel like to always be in pain and know that the daily pain will increase around every period. To know there is absolutely nothing you can do about it because there is no cure or treatment that works for you.
Endometriosis

I was finally diagnosed in 2018. They only found it because I was having surgery for fibroids. For years, no health care professional believed me. I was made to feel like I was crazy. One doctor told me I must be from another planet. Another gynecologist told me I was too skinny to have endo. I saw every kind of specialist and they all assumed I was mentally unstable.
Endometriosis

During flare ups when the pain is at its worse it can be very overwhelming, I have feelings of anxiety and depression, feelings of not being good enough or a burden on my partner friends and employers
Endometriosis

Pain started with first period. It was so heavy too.
Endometriosis

Emotionally, it’s hard. Especially with the infertility piece. It’s hard to watch other women’s bodies do what they were designed to do, so easily, and sometimes accidentally. Meanwhile, there are those of us out there who have to look at the science of why things work the way they work, and try to work with that, and it still doesn’t always work out how you want or expect it to.
Endometriosis

For 30 years it was not good, i was told it was normal, it was IBS, lifestyle choices i was just overweight, i was ignored and gave up- until it became so bad, i also had to fight for the right pain medications
Endometriosis

People need to see the damage it does it’s not just a period disease it’s grown into my bladder, super glued everything together, my bowel doesn’t work properly. Damaged my tubes and give me nerve damage in my womb
Endometriosis

I feel like there is an emptiness in my heart for the child I never got to have. I feel like I am damaged.
Endometriosis

I would like to see a cure or treatment that allows us to have minimal symptoms but also to be recognised as a disability
Endometriosis

I fear it will always come back and I always fear that I will not be taken seriously. I would love to see new, non-invasive treatments and advancements made. I also wish there was funding to help with medical bills related to endo management.
Endometriosis

At its worst, endometriosis pain feels like I’m dying, or I wish I would die – it’s the worst pain I’ve ever experienced. Imagine someone tearing your insides apart and then setting them on fire. Sometimes I can’t believe I can be in that amount of pain and still be conscious.
Endometriosis

It is like fighting for your life every single day. Until the period pain arrives and then you pray to God that you pass out or die.
Endometriosis

I was told I was drug seeking, and attention seeking. All this time my dad thought I was just trying to get out of school, and I was being dramatic. My mum was my only and biggest support. I have lost a lot of faith in the healthcare system.
Endometriosis

People often talk about being gaslit by the medical system. What they don’t talk about is what happens next. It’s when you start gaslighting yourself.
Endometriosis

A lot of people dont understand how bad endo gets and think your a negative person when you complain about pain