What was the beginning of your endometriosis journey like before you knew what was happening?

Agonizing

When were you diagnosed, and what was your journey to getting diagnosed like?

Last year in February, it was scary due to a Risidual cast falling out of me and then internally bleeding with the worse pains possible

What did it feel like to finally have a name for what you were experiencing?

I knew what I had before I had it .

How does endometriosis show up in your body and daily life?

It’s tiring , draining, random pain and runny fluids coming out of me at random times, when I’m not expecting it .

How would you describe the pain or physical challenges of endometriosis?

Horribly , I have adenomyosis as well so the two being together are extremely detrimental

Do you have “good days,” and if so, what do they look like?

Yes, full energy, good sleep, good mood

How has endometriosis affected your education, work, routines, or ability to make plans?

Yes I can’t work a normal job , every time I have I ended up in emergency surgery. I can’t go to amusements without agonizing pain, because the pressure from the rides are too much.

Has endometriosis had an impact on your finances or access to care?

No

What has your experience been like with doctors, specialists, and navigating the healthcare system?

I’ve been told im a “complicated case”, by more than 2 doctors .

What has your experience been with treatments, surgeries, medications, lifestyle changes, or other approaches?

I’m on iud & birth control patch.

Occasionally pain medicine such as ketorolac.

What has it been like to live with a condition that often isn’t visible to others?

It’s stressful

Have there been times when you felt dismissed or not believed about what you were going through?

Not necessarily dismissed or not believed but , confused and hurt due to no solution.

What has the emotional or mental side of living with endometriosis been like for you?

This has been like hell for me, depressing .

How has endometriosis affected your relationship with your body, identity, or sense of self over time?

I lost sense of who I was , I used to be a traveler ; go go go type of person always having fun living life and now it’s hard for me just to leave my bed.

How has endometriosis affected your family relationships, friendships, or dating life?

It hasn’t really affected family . Relationships I’ve been turned away due to a tubal removal , and it’s heart breaking

Has endometriosis had an impact on intimacy or your sexual life?

Yes big time

If relevant to your experience, how has endometriosis influenced your thoughts, decisions, or experiences around fertility and family planning?

I can only do ivf

Beyond treatment, have you found anything that genuinely helps you cope physically or emotionally?

Singing & reading others story’s!

Do you feel supported in your journey? Who or what has helped you most?

Yes I do.

Have you connected with others who have endometriosis, either online or in person? What has that experience been like?

I have not ):

How has your relationship with endometriosis changed over time?

Yes & no

More broadly, what are your thoughts on how the medical community understands and prioritizes endometriosis?

They need to focus more on this matter and try to come up with a solution and problem solve the lying issue so girls such as myself ; and many of thousands of others can stop suffering !

How do you feel endometriosis is represented in society or the media? What would you like to see change?

I feel like it’s not talked about enough; or known enough.

What would you like more people to understand about endometriosis?

Everything , every part of it

When you think about the future, what fears, concerns, or hopes do you have?

Having a family due to the financial cost.

Is there anything else you’d like to share?

No.