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Author: pteyra

Fibromyalgia

They try to make it off as anxiety, stress, or even tell you that it’s all in your head. It took me over a decade to find a doctor that took me seriously.
Fibromyalgia

Its a monster inside thats always coming up with new ways to make you feel worse. I can barely leave my home anymore, everything seems to trigger my symptoms.
Rheumatoid Arthritis

It is not arthritis!!!! It is an autoimmune disorder!!! People think it’s “ just arthritis “ please change the name
Rheumatoid Arthritis

Flare ups seem to get worse as time goes on . Hands are painful, achy all the time, bone damage lots of breaks. Stiffness every day
Rheumatoid Arthritis

Fatigue is more than just tired, even when you’ve had enough sleep you still feel tired.
Rheumatoid Arthritis

This week I have handed in my notice, to a job that I loved, I am terribly sad
Fibromyalgia

The pain is constant. It never goes completely away. I go to bed and wake up with a severe headache. This does not include the migraines I also have. My body hurts all the time. Nerve ending pain, headaches, pain when standing, sitting, laying down, sleeping and resting. It has sucked all the enjoyment out of my life. I have to cancel outings because going will be too much and cause a flare.
Fibromyalgia

I’ve just been diagnosed with onset dementia as a direct symptom of long term fibromyagia and chronic fatigue, I’m 60.
Fibromyalgia

When in a fibro flare, I can’t focus on a single thing, not the TV, not crochet. I’m like a zombie getting electrocuted constantly.
Fibromyalgia

It feels like the most intense horrible burning pain shooting throughout my body like high pressurized water shooting through a pipe. My body feels completely weak, as if I can’t lift a finger. My brain fog is so intense I can’t form simple sentences. It feels like my whole body is panicking terribly all the time. It’s so hard to keep control of my body and my emotions. Just the daily struggle.
Fibromyalgia

I lost who I was and the things, activities, and personality that defined me. Now I’m just a lost, lonely nobody.
Fibromyalgia

It is a non visible disability that affects the body 24hrs a day and that there’s no time off from it
Fibromyalgia

Stop thinking we enjoy laying in bed the whole day, feeling unlike yourself as you cannot do what you would normally do. It is a vicious cycle that leads to depression and feeling of hatred towards yourself
Fibromyalgia

I’ve lost my sense of self completely, he’s gone forever. I don’t really have a relationship with my body
Fibromyalgia

Even when I manage to sleep through the night, I feel like I’ve been awake for days. Some days im so exhausted that being awake makes me feel like throwing up and I want to crawl out of my skin. Sometimes I cant even move because my body literally refuses to work with me due to the exhaustion.
Fibromyalgia

Some doctors don’t go into the field of medicine to help patients,they do it for their paychecks..the oath do no harm, goes out the door.. compassion and empathy should be their motto..stop judging and putting titles of drug seeking on patients
Fibromyalgia

Some days I wonder why am I still here. Its so stressful and emotionally draining
Fibromyalgia

I’m always tired but find it difficult to sleep due to the pain
Endometriosis

The one thing I can say is that endometriosis is never really gone. You can get the surgery, you can have some relief, but endo is never really gone. Depending on your body, it can grow back in four months, it can grow back in 10 years, you never know.
Misokinesia

I wouldn’t wish this on anyone.
Childfree

I always thought it would be best to not have children however most of the partners I’ve had have wanted children so I just thought that I might one day but didn’t want to make plans to. I got out of a bad relationship in my late 30s I thought I’ve stayed child free this long. I will definitely stick by this decision for Good now.
Childfree

Being childfree isn’t selfish. it’s the most responsible choice that a human being makes.
Childfree

I think its odd how so many people think children are objects to fulfill or take care of them but then call child free people selfish. I think its narcissistic to want kids just for what they can do for you. I think the only good reason to have kids is because you feel equipped and called to raise another human to be the best version of themselves.
Endometriosis

Despite my high pain tolerance, the pain I get on my period is the worst pain I have ever felt in my life. It’s about tied with IUD insertion, which was done with no pain relievers or numbing. Endo pain is the first type of pain that has made me cry and made me want to throw up. It makes my legs weak, and I end up walking bent forward and shuffling my feet, like an old woman. It makes it hard to concentrate.
Endometriosis

I saw several doctors, many of whom told me things along the lines of ‘you’re too young for endometriosis’, ‘it’s a weak pelvic floor’, ‘get pregnant, it’ll make the symptoms go away’ and I was even accused of drug seeking. I have spent many, many days in agony and still do because I feel like I’m never going to be taken seriously. Finally, I had the surgery, but even that didn’t fix my symptoms. Once again, I was back to square one.
Endometriosis

I consider suicide frequently. I fantasize about walking into traffic. I cannot sleep. I cannot eat. My legs are heavy. I feel like I’m being eaten alive from the insides. I have a diagnosis. I have had all the surgeries. I have done all the treatments. No one takes my pain seriously. I cannot imagine having a romantic relationship. I cannot imagine much of a future. I would not mind dying.
Endometriosis

Although various symptoms come and go weekly, the daily chronic fatigue is relentless, feeling like I’ve been drugged nearly every morning. I spend more time thinking about wanting to just go home and lay down than anything else throughout my day.
Endometriosis

At its worst unbearable. You would do anything to make it stop. Like someone ripping your insides out. Stabbing in stomach stabbing up the anus. Feeling sick. Hot sweaty. Like bad period pain with indigestion and a kidney infection at the same time. Rolling around on the floor.
Endometriosis

I struggle with extreme pain and fatigue. I live in an unpredictable body and that makes it hard to plan my life. I struggle with feeling overwhelmed, like a burden, I worry people don’t believe me. I think I often mask and downplay how I’m actually feeling to make the people around me more comfortable.
Endometriosis

Pain is as if my entire pelvic region has barbed wire around it, when I move the barbed wire pulls tighter, when I stay still too long the barbed wire pulls, it’s never being able to be fully comfortable and having to constantly adjust. I’ve had to give up every physical thing I used to love because the pain flares during and following got too intense to manage.
Endometriosis

Dr said he had never seen so much endo in a person my age. I started my period at 14 I was diagnosed at 16.
Endometriosis

Endometriosis has taken so much from me. It has broken me in ways I never thought possible. It has shattered my outlook on life. I hope to one day be the happy, whole person that i used to be, but for right now, im fighting a silent battle
Endometriosis

It’s draining daily, whether that be excessive bleeding, fatigue or pain you can’t quite explain unless someone has experienced it. It affects what you wear, what you eat, how many hours you work, and I even go to bed when my 5 year old son does. I keep a heat pad in my office and have to sometimes wear loungewear to work, luckily I have understanding colleagues. I also have to heavily rely on my family to the point we live in the next street.
Endometriosis

Dealing with this disease has opened my eyes to how much the medical system hates women. Why is it that we have to continue to push for answers for our bodies. I was accused of being a drug addict because I was dealing with such pain. Everyone treats me like I’m making up this disease, even after I have had 3 surgeries, one being 9 hours long.
Endometriosis

Some days I compare the pain to labor pains. I have had two children, so I know what that feels like. Some days I describe it like this: Imagine a person grabbing your insides and twisting them together like a wet towel, but the towel is on fire. The bloating is horrible as well, many days my clothes don’t fit which is very disheartening. I live an active lifestyle, and workout at least 5 days a week. Some days, I can hardly manage a long walk at the gym because the exhaustion is so bad. And yet-we power through!
Endometriosis

The pain radiates through every part of my body. Some days it feels like a sharp jagged tool inside me and is ripping its way through every part of my guts, uterus, bowels and body until it’s done. There’s a point where you have to just surrender to the pain and allow yourself to know that there is another side to it.
Endometriosis

It was horrible, it was intense and constant pain, it was painful sex, it was periods that would flood and go on forever, it was insane pain during ovulation, it was brain fog, fatigue and insomnia. The irritability was destroying my relationship, I felt like I was going insane because doctors and hospitals wouldn’t believe me, I thought I was making the pain up.
Endometriosis

The time and energy that goes into taking meds at a certain time, going in for mid cycle ultrasounds, taking pregnancy test, and having blood draws is exhausting and begins to feel isolating, filled with grief, and frustrating. In my experience I have blamed myself for not being able to conceive which has fueled quite a lot of self hatred in that aspect.
Endometriosis

I am depressed and continually anxious! I’ve tried to take my life a good few times which I am extremely disappointed with myself because I have my 21 year old daughter to live for and I don’t ever want her to see or know that hard time I went through
Endometriosis

At its worst, the pain is unimaginable. I was bed bound and completely dependent on others for a few days each month. The depression that caused and the thought that things would never get better had me thinking of ending my life.
Endometriosis

I was diagnosed in 2020…after 10 different doctors all telling me I was stressed or crazy, I was treated like a junkie trying to score pain pills, trying all different meds, no one took me seriously.
Endometriosis

I would rather give birth every day than go through my endo flare ups. They ruin my life. I walk with a permanent limp, look 8 months 2/3 weeks a month.
Endometriosis

The pain was horrendous like a twisting knife cutting into you it took my breath away unbearable I used to pass out on the bathroom floor I lived on my own it’s a very dangerous disease if you live alone you really need a call alarm
Endometriosis

It has changed my life. It is taken away my life. It has made me realize that there are worse things than death.
Endometriosis

I really feel like giving up a lot. I’m not living anymore I’m just here waiting for next painkiller or next appointment.
Endometriosis

Terribly painful periods. At one point I was taking my Mothers cancer pain meds. I take 2-4 in one go and start hallucinating from the strong pain killers – but the pain was just that unbearable that I needed the pain meds so badly. Initially it was just thought to be bad period pains. Later on it was thought to be bad IBS and intolerance of things like lactose and gluten.
Endometriosis

I can’t walk most days, it’s in my spinal nerves. I am 37 stuck in the broken body of a 60 year old. Pain is 8 out of 10 or more every day. And I am restricted from doing so many things with my life. I feel trapped.
Endometriosis

Unfortunately, I feel like the healthcare system failed me for many years. By the time I was finally diagnosed, my endometriosis had already progressed to Stage IV at just 19 years old. I often wonder how different things could have been if someone had listened sooner. Earlier diagnosis may have prevented some of the pain and suffering I’ve experienced
Endometriosis

Pain, bowel, bladder issues. Blood loss, headaches, leg pains. Now I’m older kidney issues. Extreme tiredness. Migraines.
Endometriosis

I hate hospitals now due to it all

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Thank you for allowing me to witness you, and for being part of something that means the world to me.
-Pteyra

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