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Author: pteyra

Endometriosis

I’ll never forget reading about a nurse talking about caring for women, saying something like ‘these women are in so much pain that they are relieved to be diagnosed with an incurable illness’ – it describes my experience perfectly
Endometriosis

I’m physically exhausted daily. I cant be me. I constantly wonder when the next flare up will hit me. Its a very anxiety loaded diagnosis
Endometriosis

They need to focus more on this matter and try to come up with a solution and problem solve the lying issue so girls such as myself ; and many of thousands of others can stop suffering !
Endometriosis

The pain is excruciating. I have been knocked over by car, I’d rather go through that again than the Endo pain.
Endometriosis

My pain is located in my lower abdomen my lower back and down my left leg, I also experience extreme mood swings, hormonal acne, bowel and bladder issues, bloating and fatigue. I have recently began taking low dose monjaro and it has had a surprisingly positive impact on the severity of pain. However I have also recently experienced liver failure due to the volume of pain medication I have to take and the length of time I have been exposed to it .
Endometriosis

Endo is always at the forefront of my mind. I cried in the baby clothes section at target atleast 3x since I booked my second surgery. I booked 2 weeks ago.
Endometriosis

It varies by day. Some days, it feels like someone’s craving your insides, like you’re a jack-o’-lantern. Other days, it makes you bloat like an eight-month-pregnant woman. Sometimes, it’s like someone’s beating you with a baseball bat. Your energy levels are low, you’re always exhausted, and most days, you’re in pain.
Endometriosis

I’m in pain everyday the whole day, I am exhausted all the time. I only wear black pants because my period is not regular and I have a fear of soiling myself.
Endometriosis

I don’t put any effort into fertility concerns because I don’t want to put my body through trouble.
Endometriosis

Every single day I have pain. Not one day goes by where I do not experience any pain. I am bloated most days. A few years after my surgery I was diagnosed with may thurner syndrome. A few times a month that flares up with my endometriosis.
Endometriosis

Endometriosis has made starting a family nearly impossible…. I’ve experienced 3 miscarriages naturally, three IVF cycle with 34 embryos and none of them making it to blastocyst. Endometriosis has robbed me of my dream of becoming a mother. It has been devastating
Endometriosis

They don’t understand, we are not heard, we are not seen, there is not enough research on endometriosis in women. They do not know our pain!!
Endometriosis

I’ve expierienced the worse pain in my life with Endo. Nothing has compared so far. It messes up how I answer the pain scale because in comparison everything else feels like mild discomfort.
Endometriosis

It’s tough. I feel like a bad mother when I don’t have the energy to do it all for them. I feel like a bad wife when I’m in pain or sexual activity is painful and my husband feels bad despite not trying to hurt me. I feel like a terrible coworker, and nurse when I have to miss time for my illness. And a bad friend when I miss out on plans from pain and exhaustion.
Endometriosis

Completely isolating because no one can see it. If I showed how I feel I’d lose my job and marriage. People say they care but can’t cope with listening or understanding what it can possibly feel like to always be in pain and know that the daily pain will increase around every period. To know there is absolutely nothing you can do about it because there is no cure or treatment that works for you.
Endometriosis

I was finally diagnosed in 2018. They only found it because I was having surgery for fibroids. For years, no health care professional believed me. I was made to feel like I was crazy. One doctor told me I must be from another planet. Another gynecologist told me I was too skinny to have endo. I saw every kind of specialist and they all assumed I was mentally unstable.
Endometriosis

During flare ups when the pain is at its worse it can be very overwhelming, I have feelings of anxiety and depression, feelings of not being good enough or a burden on my partner friends and employers
Endometriosis

Pain started with first period. It was so heavy too.
Endometriosis

Emotionally, it’s hard. Especially with the infertility piece. It’s hard to watch other women’s bodies do what they were designed to do, so easily, and sometimes accidentally. Meanwhile, there are those of us out there who have to look at the science of why things work the way they work, and try to work with that, and it still doesn’t always work out how you want or expect it to.
Endometriosis

For 30 years it was not good, i was told it was normal, it was IBS, lifestyle choices i was just overweight, i was ignored and gave up- until it became so bad, i also had to fight for the right pain medications
Endometriosis

People need to see the damage it does it’s not just a period disease it’s grown into my bladder, super glued everything together, my bowel doesn’t work properly. Damaged my tubes and give me nerve damage in my womb
Endometriosis

I feel like there is an emptiness in my heart for the child I never got to have. I feel like I am damaged.
Endometriosis

I would like to see a cure or treatment that allows us to have minimal symptoms but also to be recognised as a disability
Endometriosis

I fear it will always come back and I always fear that I will not be taken seriously. I would love to see new, non-invasive treatments and advancements made. I also wish there was funding to help with medical bills related to endo management.
Endometriosis

At its worst, endometriosis pain feels like I’m dying, or I wish I would die – it’s the worst pain I’ve ever experienced. Imagine someone tearing your insides apart and then setting them on fire. Sometimes I can’t believe I can be in that amount of pain and still be conscious.
Endometriosis

It is like fighting for your life every single day. Until the period pain arrives and then you pray to God that you pass out or die.
Endometriosis

I was told I was drug seeking, and attention seeking. All this time my dad thought I was just trying to get out of school, and I was being dramatic. My mum was my only and biggest support. I have lost a lot of faith in the healthcare system.
Endometriosis

People often talk about being gaslit by the medical system. What they don’t talk about is what happens next. It’s when you start gaslighting yourself.
Endometriosis

A lot of people dont understand how bad endo gets and think your a negative person when you complain about pain
Misokinesia

I think it is a brain disorder, how I receive input from the outside and now my brain perceives it as a fighter fight situation.
Fingerboarding

I value skill and want to be known as one of the greatest to ever touch a fb
Fingerboarding

I started fingerboarding just for the sole purpose of having a fidget toy
Fingerboarding

I first discovered fingerboarding when it started raining and I couldn’t go outside to ride my skateboard
Fingerboarding

its been fantastic and really fun and I’d recommend it to everyone who finds it interesting. Grab a cheap tech deck from the store and get started!!!
Fingerboarding

now that we’re in our 30s, the impact on us when we play fingerboarding is different because it gives us benefits, it becomes a stress reliever for us
Brazilian Jiu-Jitsu

I am excited to be competing in ADCC worlds in Poland in September and I can’t believe how far I have come
Fingerboarding

i ripped up the ligaments in my right ankle making skateboarding a more painful challenge and eventually become too much to bear. So i went full force into Fingerboarding.
Brazilian Jiu-Jitsu

BJJ means having a second family, knowing that I’m able to do anything I put my mind to and makes me want to better myself physically and mentally everyday
Endometriosis

It’s very frustrating and depressing living with this condition because people just see you as normal person and expect you to be able to do what a normal healthy person does
Endometriosis

The beginning was at the very start of my period. Back in 2017, I would have heavy periods where I would nearly blackout.
Endometriosis

I have endometriosis in my womb, ovaries, bladder and bowel plus those organs have fused together due to the endo tissue. The pain I feel every day is no joke.
Surfing

These days, surfing is one of the few places where I feel completely present. That’s what keeps me coming back.
Surfing

I am a surf coach and I surf almost everyday. It changed everything
Brazilian Jiu-Jitsu

BJJ means having a second family, knowing that I’m able to do anything I put my mind to and makes me want to better myself physically and mentally everyday
Surfing

I believe everyone should find something that allows them to find complete peace, for me, that’s surfing
Endometriosis

Once I was diagnosed I never had follow up
Brazilian Jiu-Jitsu

That confidence is something I never had before and it follows me everywhere I go. As a woman, i think grappling is so incredibly special.
Brazilian Jiu-Jitsu

Jiu-Jitsu extended my life
Fingerboarding

Some of my classmates had these little skateboards called Tech Decks, and I was really amazed by the graphics and designs.
Brazilian Jiu-Jitsu

I had a few negative experiences and felt like I needed to learn how to defend myself in some capacity

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Thank you for allowing me to witness you, and for being part of something that means the world to me.
-Pteyra

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