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Topic: Endometriosis
My pain is located in my lower abdomen my lower back and down my left leg, I also experience extreme mood swings, hormonal acne, bowel and bladder issues, bloating and fatigue. I have recently began taking low dose monjaro and it has had a surprisingly positive impact on the severity of pain. However I have also recently experienced liver failure due to the volume of pain medication I have to take and the length of time I have been exposed to it .
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Topic: Endometriosis
It varies by day. Some days, it feels like someone’s craving your insides, like you’re a jack-o’-lantern. Other days, it makes you bloat like an eight-month-pregnant woman. Sometimes, it’s like someone’s beating you with a baseball bat. Your energy levels are low, you’re always exhausted, and most days, you’re in pain.
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Topic: Endometriosis
It’s tough. I feel like a bad mother when I don’t have the energy to do it all for them. I feel like a bad wife when I’m in pain or sexual activity is painful and my husband feels bad despite not trying to hurt me. I feel like a terrible coworker, and nurse when I have to miss time for my illness. And a bad friend when I miss out on plans from pain and exhaustion.
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Topic: Endometriosis
Completely isolating because no one can see it. If I showed how I feel I’d lose my job and marriage. People say they care but can’t cope with listening or understanding what it can possibly feel like to always be in pain and know that the daily pain will increase around every period. To know there is absolutely nothing you can do about it because there is no cure or treatment that works for you.
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Topic: Endometriosis
I was finally diagnosed in 2018. They only found it because I was having surgery for fibroids. For years, no health care professional believed me. I was made to feel like I was crazy. One doctor told me I must be from another planet. Another gynecologist told me I was too skinny to have endo. I saw every kind of specialist and they all assumed I was mentally unstable.
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Topic: Endometriosis
Emotionally, it’s hard. Especially with the infertility piece. It’s hard to watch other women’s bodies do what they were designed to do, so easily, and sometimes accidentally. Meanwhile, there are those of us out there who have to look at the science of why things work the way they work, and try to work with that, and it still doesn’t always work out how you want or expect it to.
